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ABOUT THE PCCA

The Palliative Care Collaborative Aotearoa (PCCA) has been formed to give a collective voice on the need for better, more equitable palliative care across all of New Zealand. Our five founding member organisations are Hospice NZ - Te Kahu Pairuri o Aotearoa, The Australia New Zealand Society of Palliative Medicine, Hospital Palliative Care NZ, Palliative Care Nurses NZ, and Paediatric Palliative Care Australia and New Zealand.

Please join us in our campaign to make high quality palliative care available to everyone in Aotearoa New Zealand. If you would like to receive updates from the PCCA, including the latest news, click here.

JOIN OUR CAMPAIGN

By uniting with a single strong voice, we aim to gain widespread support and understanding of the need for high quality palliative care to be available to all people in Aotearoa New Zealand.

We are passionate about improving care for people who are dying, and do not think it is right that many New Zealanders – particularly

those in marginalised groups – are currently missing out on receiving best practice palliative care because of where they live, or their age and/or their ethnicity.

The PCCA wants high quality palliative care to be available to people of all ages in Aotearoa New Zealand.

About us

OUR AIMS

The Palliative Care Collaborative Aotearoa (PCCA) aims to advocate, lead and advise to get better, more equitable palliative care available across New Zealand.

In order to achieve this, we have identified six key areas where access and equity to palliative care can be improved.

We will work with the Ministry of Health, Te Whatu Ora - Health NZ, and Te Aka Whai Ora -

Māori Health Authority, in our efforts to lift palliative care in New Zealand.

Our aim is to get Government agencies to prioritise and fund programmes that lead to more equitable and accessible palliative care.

Our collaborative is concerned that New Zealand’s world ranking on the quality of care given at end-of-life is dropping – from 

3rd in 2009 to 12th in 2021.

We want to see action on the recommendations received in the 2012 MoH Guidance document for Palliative Care, the 2012 Guidance document for Integrative Paediatric Palliative Care, the 2017 review of Palliative Care, and the 2021 Maxim Institute report. 

The six key areas are:

  • Public Awareness

    Public Awareness

  • Education

    Education

  • Accessibility

    Accessibility

  • Funding

    Funding

  • Governance & Strategy

    Governance & Strategy

  • Children’s Palliative Care

    Children’s Palliative Care

LATEST NEWS

 

Read our August 2024 Newsletter here 

 

 The repository for the Aotearoa Specialist Adult Palliative Care Guidelines can be found online at Hospice New Zealand.   View the repository here 

 

An updated and more comprehensive version of the “go to resource” for health professionals working in paediatric palliative care in Australia and New Zealand is now available. Find out More

Honohono Tātou Katoa, is a movement creating compassionate communities in Aotearoa.  Empowering communities to give everyone a chance to live their lives fully until the end.

 

Grief is unique to each of us, but it's also a universal experience so we really need to talk about it more. Listen here to Cariad Lloyd talk about her book - described as a "map" for the journey of grief - You Are Not Alone.

 

Best Practice Recommendations for the Management of Motor Neurone Disease - published in November 2022,  by Motor Neurone Disease NZ.

 

Why Organisational Values Matter too.  Read this Palliative Care Research that looks at the association between personal and organisational value discrepancies and compassion ability, burnout, job satisfaction, absenteeism and consideration of early retirement among healthcare professionals.

 

We do not think of hospitals as the ideal place for our friends or whānau or even for ourselves to die. And yet about one in  three people  will die in the busy acute hospital environment. How can we make that experience a bit more human and compassionate?  Read here about how a quilting project is helping people die with more comfort.

 

 Click here to read Dr Ross Drake from Starship's account of a Day in the Life of a Paediatric Palliative Care specialist.

 

With Aotearoa's ageing population, demand for palliative care is projected to increase substantially in
the next 20 years. How will the current model for delivering palliative care be sustained? This article describes the current landscape of specialist community palliative care services across New Zealand whilst incorporating an equity lens on these services.

 

An important aspect of caring for the dying is learning how to take enough care of yourself. This is just some of the advice palliative care nurse, Susan Marsden shares in her new book Thank You, Elisabeth. Listen to the RNZ interview here.

 

 

 

 

 

 

SIGN OUR PETITION

Please join us in our campaign to make high quality palliative care available to everyone in Aotearoa New Zealand.

SIGN OUR PETITION

Sign our petition and add your support as we call on the Government to make palliative care more accessible and equitable across the country.

WHO WE ARE

The Palliative Care Collaborative Aotearoa (PCCA) has been established by five founding members. They are:

Hospice NZ - Te Kahu Pairuri o Aotearoa (HNZ) – The national organisation representing all hospice services in New Zealand. Hospice NZ works in partnership with all hospice members to ensure people needing end of life hospice care are well supported. Visit www.hospice.org.nz 

The Australia New Zealand Society of Palliative Medicine (ANZSPM) - This organisation facilitates professional development and support for its members, promotes the practice of palliative medicine, and advocates for those who work in the field of palliative medicine. Visit www.anzspm.org.au 

Palliative Care Nurses NZ (PCNNZ) – Represents nurses from all care settings who either work in, or have an interest in, the specialty of palliative care across New Zealand. Visit www.pcnnz.co.nz 

Paediatric Palliative Care Australia and New Zealand (PaPCANZ) - A professional group consisting of specialist palliative services in Australia and New Zealand. PaPCANZ aims to further develop paediatric palliative care, build expertise through education, and ensure sustainability and excellence in this specialisation.

Hospital Palliative Care New Zealand (HPCNZ) - Established over 20 years ago, HPCNZ mainly comprises nurses and doctors, but membership is open to others such as managers and pharmacists. They meet yearly to discuss current issues, challenges, and to provide an opportunity for learning and sharing. The Chair and leadership group actively represent the group at a national level, and generate submissions, guidance, and reports as required in response to national developments. HPCNZ has worked in close collaboration with HNZ, ANZSPM and PCNNZ over the years.

Join Our Campaign

Sign up to our newsletter, and join us in our campaign to make high quality palliative care available to everyone in Aotearoa New Zealand .

* Also, don't forget to sign our petition.

CONTACT US

admin@pcca.nz

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